Co-Director, Centre for Inclusion and CitizenshipSocial Inclusion and Equity Research Cluster Leader, Institute for Community Engaged ResearchAssociated Health Researcher, The Collaborative RESearch Team to study psychosocial issues in Bipolar Disorder [CREST.BD]
Rachelle is the co-director of the Centre for Inclusion and Citizenship (CIC), the only university based research centre in Canada with a dedicated focus on intellectual disability policy and practice. The CIC was established as a partnership between the University of British Columbia, government, and community living organizations and supporters seeking to further the inclusion and full citizenship of people with intellectual disabilities and their families, locally, nationally, and globally. More specifically, the CIC was created to meet an identified need to conduct research to influence and inform policy and practice through learning, research, and knowledge exchange [visit – http://cic.arts.ubc.ca].
Rachelle is also a member of the UBC Institute for Community Engaged Research (ICER) and the leader of the social inclusion and equity research cluster [visit – http://icer.ok.ubc.ca]. She is also an associated health researcher of the Collaborative RESearch Team to study psychosocial issues in Bipolar Disorder (CREST.BD) [visit – http://www.crestbd.ca].
Rachelle’s doctoral degree was in interdisciplinary studies with a focus on critical disability studies. Drawing on feminist poststructural theories, Rachelle explored how three culturally Deaf women perceived the influence of hearing loss on their identities. This interest emerged from her 20 years of practice working with Deaf, hard of hearing and D/deaf-blind individuals throughout the province of British Columbia.
Rachelle’s research programme is informed by two complementary streams: 1) a substantial focus on the socio-cultural practices that promote social inclusion and equity, and 2) a methodological focus on community based participatory research methods. Critical disability studies is central to the first stream informing Rachelle’s research in the area of community living and intellectual disability.
Current and recent funded research:
- The BC Transitioning Youth with Disabilities and Employment – “The TYDE Project” [$138,000; Co-Funded by the Canadian Institutes for Health Research and the Social Sciences and Humanities Research Council] April 2016 – March 2018. For more information visit https://mytyde.ca
- Sex, Lies and Citizenship: A Participatory Theatre Research Project [$145,000; funded by the Vancouver Foundation] 2017 – Spring 2019. A partnership between the Centre for Inclusion and Citizenship, the Community Living Society, and the City of New Westminster. Researchers: Hole, Schnellert, and Stainton.
- BRIDGES: Building Resources for Innovative Development, Growth, and Economic Stability – An Evaluation. [$85,000; funded by the Ministry of Social Development and Social Innovation] A partnership between the Okanagan Nation Alliance and UBC researchers Drs. Rachelle Hole and Mike Evans.
- Community Building Now! [$10,000; funded by the Vancouver Foundation] January – December 2017. A partnership between the Centre for Inclusion and Citizenship and the Shuswap Association for Community Living. Researcher: Hole and research assistant: Liz Jones.
- How can families engage in safe and active recreation with their children living with autism spectrum disorders? [$55,255; Funded by the Social Sciences and Humanities Research Council] 2016 – 2018; Olsen (PI), Hole (Co-I).
- Evaluating Ready, Willing & Able (a national initiative to increase employment for individuals with intellectual disabilities and Autism across Canada). [$410,000 funded by the Canadian Association for Community Living] 2015 – 2018; Stainton, Hole and Crawford (Co-PIs)
- Knowledge to Action: Like a ship that’s always righting itself: Self-management of bipolar disorder, from evidence to action. [$200,000, Canadian Institutes for Health Research] 2013 – 2015; Michalak (PI), Hole et al. (Co-Is).
- Sexual Health Knowledge and Intellectual Disability. [$10,000, Vancouver Foundation] 2015 – 2016; Hole & Clancy (Co-PIs), Stainton, Schnellert, Corneil, Collins, & Johannes (Co-Is).
- Making Cultural Safety Work in the Okanagan Valley: Sharing Knowledge for Change. [$11,500, Canadian Institutes for Health Research] 2015 – 2016; Hole & Evans (Co-PIs), Alexis & Hetu (Co-Is).
- Diversifying health human resources: Exploring the experiences of practitioners with disabilities in the health professions. [$200,000, Canadian Institutes of Health Research] 2014 – 2017; Jarus (PI), Hole et al. (Co-Is).
- Establishing cultural safety and effecting organizational change for Aboriginal healthcare. [$405,000, Canadian Institutes for Health Research] 2009 – 2015; Hole (nominated PI), Evans, Bottorff, Berg (Co-PIs).
- Road to Inclusion or Increased Risk: Home sharing and people with intellectual disabilities. [$128,320, Social Sciences and Humanities Research Council] 2009 – 2013; Hole (PI), Stainton, Robinson, and Crawford (Co-Is).
Journal Articles: (students are indicated by an asterisk)
*Morton, E., Michalak, E., Hole, R., Buzwell, S., & Murphy, G. (Online 1573-2649/Feb. 2018). The ‘new normal’ – Relativity of quality of life judgments in individuals with bipolar disorder: A qualitative study. Quality of Life Research. https://doi.org/10.1007/s11136-018-1811-x
*Morton, E., Michalak, E., Hole, R., Buzwell, S., & Murphy, G. (2018). “Taking back the reins” – a qualitative study of the meaning and experience of self-management in bipolar disorder. Journal of Affective Disorders, 228, 160 – 165.
*Cornelissen, E., Mitton, C., Davidson, A., Reid, C., Hole, R., Visockas, A. & Smith, N. (June 2016). Fit for Purpose? Introducing a rational priority setting approach into a community care setting. Journal of Health Organization and Management 30 (4). http://dx.doi.org/10.1108/JHOM-05-2013-0103 .
Rush, K., *Kjorven, M., & Hole, R. (2016). Older adults’ discursive practices that shape and discipline post-hospitalization risk. The Gerontologist 56 (3), 494-503. doi:10.1093/geront/gnu092.
Michalak, E., Jones, S., Lobban, F., Perez Algorta, G., Barnes, S., Berk, L., Berk, M., Hole, R., Lapsley, S., Maxwell, V., Milev, R., McManamy, J., Murray, G., Tohen, M., Tse, S., Sanchez de Carmona, M., Johnson, S.L., the ISBD Taskforce on Community Engagement & CREST.BD. (2016). Harnessing the potential for community-based participatory research approaches in bipolar disorder. International Journal of Bipolar Disorders, 4 (1). doi: 10.1186/s40345-016-0045-5
Johnson, S.L., *Moezpoor, M., Murray, G., Hole, R., Barnes, S.J., CREST.BD and Michalak, E.E. (2016). Creativity and bipolar disorder: Igniting a dialog. Qualitative Health Research, 26 (1), 32 – 40. doi:1177/1049732315578403
Hole, R., Robinson, C., Stainton, T., Lige, S., & Crawford, C. ( 2015). Home sharing and people with intellectual disability: Tips from the experts! A qualitative exploration Journal of Policy & Practice in Intellectual Disability, 12 (4), 270 – 287.
*Romyn, A., Rush, K., & Hole, R. (2015). Vascular Access Transition: Experiences of patients on Hemodialysis. Nephrology Nursing Journal, 42 (5), 445 -453.
Michalak, E.E., Lane, K., Hole, R., Barnes, S.J., Khatri, N., Lapsley, S., Maxwell, V., Milev, R., Parikh, S.V., Berk, L., Berk, M., Tse, S., Murray, G., Algorta, G.P., Lobban, F., Jones, S., & Johnson, S.L. (2015). Towards a better future for Canadians with bipolar disorder: Principles and implementation of a community-based participatory research model. Engaged Scholar Journal: Community-Engaged Research, Teaching and Learning, 1(1), 132 – 147.
Hole, R., Evans, M., Berg, L.D., Bottorff, J.L., *Dingwall, C., *Alexis, C., & Smith, M. (2015). Visibility and voice: Aboriginal people’s experiences of culturally safe and unsafe healthcare. Qualitative Health Research, 25 (12), 1662 – 1674. DOI: 10.1177/1049732314566325
*Cornelissen, E., Mitton, C., Davidson, A., Reid, C., Hole, R., Visockas, A., & Smith, N. (2014). Determining and broadening the definition of impact from implementing a rational priority setting approach in a healthcare organization. Social Science & Medicine, 114, 1 – 9. doi:10.1016/j.socscimed.2014.05.027
*Cornelissen, E., Mitton, C., Davidson, A., Reid, C., Hole, R., Visockas, A., & Smith, N. (2014). Changing priority setting practice: The role of implementation in practice change. Health Policy, 117, 266 – 274. doi:10.1016/j.healthpol.2014.04.010
Michalak, E., Livingston, J.D., Maxwell, V., Hole, R., *Hawke, L., Parikh, S. (2014). Using theatre to address mental illness stigma: A knowledge translation study in bipolar disorder. International Journal of Bipolar Disorder, 2 (1). doi:10.1186/2194-7511-2-1
*Wallace, B., MacEntee, M.I., Harrison, R., Hole, R., & Mitton, C. (2013). Community Dental Clinics: Providers persepctives. Community Dentistry and Oral Epidemiology, 41 (3), 193 – 203. DOI: 10.1111/cdoe.12012
Hole, R., Stainton, T., & Wilson, L. (2013). Ageing adults with intellectual disabilities: Future hopes and concerns of self-advocates and family member experiences. Australian Social Work, 66 (4), 571 – 589.
Michalak, E., Hole, R., Livingston, J., Parikh, S., McBride, S., Lapsley, S., Murray, G & the CREST. BD team. (2012). Improving care and wellness in bipolar disorder: Origins, evolution and future directions of a collaborative knowledge exchange network. International Journal of Mental Health Systems, 6 (16), 1 – 12. doi:10.1186/1752-4458-6-16. Impact factor 1.06
Pesut, B., McLeod, B., Hole, R., & Dalhuisen, M. (2012). Rural nursing and quality end of life care: Palliative care…palliative approach…or somewhere in between. Advances in Nursing Science, 35 (4), 288 – 304. DOI: 10.1097/ANS.0b013e31826b8687.
Michalak, E., Hole, R., *Holmes, C., Velyvis, V., Pesut, B., Austin, J. & Crest BD. (2012). Implications for psychiatric care of the word ‘recovery’ in people with bipolar disorder. Psychiatric Annals, 42 (5), 173 – 178. DOI:10.1080/0312407X.2012.689307
Suto, M., Livingston, J., Hole, R., *Lapsley, S., Hinshaw, S., *Hale, S., & Michalak, E. (2012). Stigma shrinks my bubble: A qualitative study of understandings and experiences of stigma and bipolar disorder. Stigma Research and Action, 2 (2), 85 – 92.
*Kjorven, M., Rush, K., & Hole, R. (2011). A discursive exploration of the practices that shape and discipline nurses’ response to postoperative delirium. Nursing Inquiry, 18 (4), 325 – 335.
Michalak, E., Livingston, J., Hole, R., Suto, M., Hale, S., & Haddock, C. (2011). “It’s something that I manage but it is not who I am”: Reflections on internalized stigma in high functioning individuals with bipolar disorder. Chronic Illness, 7 (3), 209-224. DOI:1177/1742395310395959
Stainton, T., *Brown, J., Crawford, C., Hole, R., & Charles, G. (2011). Comparison of community based residential supports on measures of Information & Planning; Access & Delivery of Supports; Choice & Control; Satisfaction; and, Overall Perception of Outcomes. Journal of Intellectual Disability Research 55 (8), 732-745. Special Issue on Supported Living/Accommodation. doi: 10.1111/j.1365-2788.2010.01378.x
Murray, G., Suto, M., Hole, R., *Hale, S., Amari, E., & E. Michalak. (2011). Self-management strategies used by ‘high functioning’ individuals with bipolar disorder: From research to clinical practice. Clinical Psychology and Psychotherapy, 18 (2), 95-109.
Evans, M., Hole, R., Berg, L., Hutchinson, P., & Sookraj, D. (2009). “Common Insights, Differing Methodologies: Towards a Fusion of Indigenous Methodologies, Participatory Action Research, and White Studies in an Urban Aboriginal Research Agenda”. Qualitative Inquiry, 15 (5), 893-910.
Hole, R. (2007). “Narratives of Identity: A Poststructural Analysis of Three Deaf Women’s Life Stories”. Narrative Inquiry, 17 (2), 259 – 278.
Hole, R. (2007). “Working between languages and cultures: Issues of representation, voice, and authority intensified”. Qualitative Inquiry, 13 (5), 696-710.
Hole, R. (2014). Qualitative Health Research. In K. Bassil and D. Zabkiewicz (Eds.) Health Research Methods: A Canadian Perspective (pp. 165 – 190). Oxford University Press.
*Lapsley, S.E., Velyvis, V., Ivanova, A., Hole, R. & Michalak, E.E. (2013). Understanding Lived Experience and Personal Recovery in People with Bipolar Disorder: A Qualitative Literature Review. In N.B. Moore (Ed.), Bipolar Disorder: Symptoms, Management, & Risk Factors. Nova Publishers: NY https://www.novapublishers.com/catalog/product_info.php?products_id=41160
Hole, R., Stainton, T., & Wilson, L. (2010). “Supporting Aging Adults with Intellectual Disabilities” In V.Prasher (Ed.) Contemporary issues in Intellectual disabilities. Nova Science Publishers. New York.
Selected of Reports:
Stainton, T., Hole, R., Crawford, C. (November 2016). Ready Willing and Able: A 2nd formative interim report. The Canadian Association for Community Living and the Canadian Autism Spectrum Disorder Alliance, 89 pages.
Hole, R., Stainton, T., *de Volder, B., & MacDonald, S. (January, 2016). An exploratory analysis of WorkBC: How is it working for people with disabilities? The Centre for Inclusion and Citizenship.
Hole, R., Stainton, T., & *Rosal, A. (August 2015). “Living a Good Life” – Quality of Life and Home Share. The Community Living British Columbia, 38 pages. http://www.communitylivingbc.ca/individuals-families/support-for-adults/home-sharing/home-sharing-quality-of-life-ubc-research-study/
Hole, R., Corbett, J., *Cook, S., & de Raaf, S. (May 2015). Mapping inclusive employment practices for individuals with developmental disabilities: A participatory research mapping project.The Ministry of Social Development and Social Innovation, The Province of British Columbia, 37 pages.
Evans, M., Hole, R., & Stainton, T. (March 2014). Giving in Action Program Evaluation: Towards a full cost/full benefits assessment of a targeted funding program supporting in-home continuity for families with persons with special needs and/or developmental disabilities. Vancouver Foundation, 19 pages.
Hole, R., *Nunn, N., *DeVolder, B., & Berg, L. (March 2012). Western Canada Case Study Research Project – Supports and Accommodations for Disabled People with Intermittent Work Capacity in Two Organizations in the Okanagan Valley. Human Resource & Skill Development Canada, Office of Disability Issues, May 2012. 63 Pages.
Hole, R., Stainton, T., & *Tomlinson, J. (2011). Social and economic outcomes: Are supported employment services for individuals with developmental disabilities a good investment? The Community Living Research Project, The Centre for Inclusion and Citizenship, University of British Columbia, and Community Living British Columbia, Province of British Columbia, May 2011. 23 pages.