Co-Director, Centre for Inclusion and CitizenshipSocial Inclusion and Equity Research Cluster Leader, Institute for Community Engaged ResearchAssociated Health Researcher, The Collaborative RESearch Team to study psychosocial issues in Bipolar Disorder [CREST.BD]
Rachelle is the co-director of the Centre for Inclusion and Citizenship (CIC), the only university based research centre in Canada with a dedicated focus on intellectual disability policy and practice. The CIC was established as a partnership between the University of British Columbia, government, and community living organizations and supporters seeking to further the inclusion and full citizenship of people with intellectual disabilities and their families, locally, nationally, and globally. More specifically, the CIC was created to meet an identified need to conduct research to influence and inform policy and practice through learning, research, and knowledge exchange [visit – http://cic.arts.ubc.ca].
Rachelle is also a member of the UBC Institute for Community Engaged Research (ICER) and the leader of the social inclusion and equity research cluster [visit – http://icer.ok.ubc.ca]. She is also an associated health researcher of the Collaborative RESearch Team to study psychosocial issues in Bipolar Disorder (CREST.BD) [visit – http://www.crestbd.ca].
Rachelle’s doctoral degree was in interdisciplinary studies with a focus on critical disability studies. Drawing on feminist poststructural theories, Rachelle explored how three culturally Deaf women perceived the influence of hearing loss on their identities. This interest emerged from her 20 years of practice working with Deaf, hard of hearing and D/deaf-blind individuals throughout the province of British Columbia.
Rachelle’s research programme is informed by two complementary streams: 1) a substantial focus on the socio-cultural practices that promote social inclusion and equity, and 2) a methodological focus on community based participatory research methods. Critical disability studies is central to the first stream informing Rachelle’s research in the area of community living and intellectual disability.
Current and recent funded research:
- Evaluating Ready, Willing & Able (a national initiative to increase employment for individuals with intellectual disabilities and Autism across Canada). [$410,000 funded by the Canadian Association for Community Living] 2015 – 2018; Stainton, Hole and Crawford (Co-PIs)
- Knowledge to Action: Like a ship that’s always righting itself: Self-management of bipolar disorder, from evidence to action. [$200,000, Canadian Institutes for Health Research] 2013 – 2015; Michalak (PI), Hole et al. (Co-Is).
- Sexual Health Knowledge and Intellectual Disability. [$10,000, Vancouver Foundation] 2015 – 2016; Hole & Clancy (Co-PIs), Stainton, Schnellert, Corneil, Collins, & Johannes (Co-Is).
- Making Cultural Safety Work in the Okanagan Valley: Sharing Knowledge for Change. [$11,500, Canadian Institutes for Health Research] 2015 – 2016; Hole & Evans (Co-PIs), Alexis & Hetu (Co-Is).
- Diversifying health human resources: Exploring the experiences of practitioners with disabilities in the health professions. [$200,000, Canadian Institutes of Health Research] 2014 – 2017; Jarus (PI), Hole et al. (Co-Is).
- Establishing cultural safety and effecting organizational change for Aboriginal healthcare. [$405,000, Canadian Institutes for Health Research] 2009 – 2015; Hole (nominated PI), Evans, Bottorff, Berg (Co-PIs).
- Road to Inclusion or Increased Risk: Home sharing and people with intellectual disabilities. [$128,320, Social Sciences and Humanities Research Council] 2009 – 2013; Hole (PI), Stainton, Robinson, and Crawford (Co-Is).
Michalak, E.E., Lane, K., Hole, R., Barnes, S.J., Khatri, N., Lapsley, S., Maxwell, V., Milev, R., Parikh, S.V., Berk, L., Berk, M., Tse, S., Murray, G., Algorta, G.P., Lobban, F., Jones, S., & Johnson, S.L. (2015). Towards a better future for Canadians with bipolar disorder: Principles and implementation of a community-based participatory research model. Engaged Scholar Journal: Community-Engaged Research, Teaching and Learning, 1(1), 132 – 147.
Johnson, S.L., Moezpoor, M., Murray, G., Hole, R., Barnes, S.J., CREST.BC and Michalak, E.E. (Available online March 2015). Creativity and bipolar disorder: Igniting a dialog. Qualitative Health Research. doi:1177/1049732315578403
Hole, R., Evans, M., Berg, L.D., Bottorff, J.L., Dingwall, C., Alexis, C., & Smith, M. (Available online, January 2015). Visibility and voice: Aboriginal people’s experiences of culturally safe and unsafe healthcare. Qualitative Health Research. DOI: 10.1177/1049732314566325
Rush, K., Kjorven, M., & Hole, R. (Online, November 2014). Older adults’ discursive practices that shape and discipline post-hospitalization risk. The Gerontologist. doi:10.1093/geront/gnu092.
Michalak, E., Livingston, J.D., Maxwell, V., Hole, R., Hawke, L., Parikh, S. (2014). Using theatre to address mental illness stigma: A knowledge translation study in bipolar disorder. International Journal of Bipolar Disorder, 2 (1). doi:10.1186/2194-7511-2-1
Hole, R., Stainton, T., & Wilson, L. (2013). Ageing adults with intellectual disabilities: Future hopes and concerns of self-advocates and family member experiences. Australian Social Work, 66 (4), 571 – 589.
Michalak, E., Hole, R., Livingston, J., Parikh, S., McBride, S., Lapsley, S., Murray, G & the CREST. BD team. (2012). Improving care and wellness in bipolar disorder: Origins, evolution and future directions of a collaborative knowledge exchange network. International Journal of Mental Health Systems, 6 (16), 1 – 12. doi:10.1186/1752-4458-6-16. Impact factor 1.06
Pesut, B., McLeod, B., Hole, R., & Dalhuisen, M. (2012). Rural nursing and quality end of life care: Palliative care…palliative approach…or somewhere in between. Advances in Nursing Science, 35 (4), 288 – 304. DOI: 10.1097/ANS.0b013e31826b8687.
Michalak, E., Hole, R., Holmes, C., Velyvis, V., Pesut, B., Austin, J. & Crest BD. (2012). Implications for psychiatric care of the word ‘recovery’ in people with bipolar disorder. PSYCHIATRIC ANNALS, 42 (5), 173 – 178. DOI:10.1080/0312407X.2012.689307
Suto, M., Livingston, J., Hole, R., Lapsley, S., Hinshaw, S., Hale, S., & Michalak, E. (2012). Stigma shrinks my bubble: A qualitative study of understandings and experiences of stigma and bipolar disorder. STIGMA RESEARCH AND ACTION, 2 (2), 85 – 92.
Kjorven, M., Rush, K., & Hole, R. (2011). A discursive exploration of the practices that shape and discipline nurses’ response to postoperative delirium. NURSING INQUIRY, 18 (4), 325 – 335.
Michalak, E., Livingston, J., Hole, R., Suto, M., Hale, S., & Haddock, C. (2011). “It’s something that I manage but it is not who I am”: Reflections on internalized stigma in high functioning individuals with bipolar disorder. CHRONIC ILLNESS, 7 (3), 209-224. DOI:1177/1742395310395959
Stainton, T., Brown, J., Crawford, C., Hole, R., & Charles, G. (2011). Comparison of community based residential supports on measures of Information & Planning; Access & Delivery of Supports; Choice & Control; Satisfaction; and, Overall Perception of Outcomes. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH 55 (8), 732-745. Special Issue on Supported Living/Accommodation. doi: 10.1111/j.1365-2788.2010.01378.x
Murray, G., Suto, M., Hole, R., Hale, S., Amari, E., & E. Michalak. (2011). Self-management strategies used by ‘high functioning’ individuals with bipolar disorder: From research to clinical practice. CLINICAL PSYCHOLOGY AND PSYCHOTHERAPY, 18 (2), 95-109.
Evans, M., Hole, R., Berg, L., Hutchinson, P., & Sookraj, D. (2009). “Common Insights, Differing Methodologies: Towards a Fusion of Indigenous Methodologies, Participatory Action Research, and White Studies in an Urban Aboriginal Research Agenda”. QUALITATIVE INQUIRY, 15 (5), 893-910.
Hole, R. (2007). “Narratives of Identity: A Poststructural Analysis of Three Deaf Women’s Life Stories”. NARRATIVE INQUIRY, 17 (2), 259 – 278.
Hole, R. (2007). “Working between languages and cultures: Issues of representation, voice, and authority intensified”. QUALITATIVE INQUIRY, 13 (5), 696-710.
Hole, R. (2014). Qualitative Health Research. In K. Bassil and D. Zabkiewicz (Eds.) Health Research Methods: A Canadian Perspective (pp. 165 – 190). Oxford University Press.
Lapsley, S.E., Velyvis, V., Ivanova, A., Hole, R. & Michalak, E.E. (2013). Understanding Lived Experience and Personal Recovery in People with Bipolar Disorder: A Qualitative Literature Review. In N.B. Moore (Ed.), Bipolar Disorder: Symptoms, Management, & Risk Factors. Nova Publishers: NY https://www.novapublishers.com/catalog/product_info.php?products_id=41160
Hole, R., Stainton, T., & Wilson, L. (2010). “Supporting Aging Adults with Intellectual Disabilities” In V.Prasher (Ed.) Contemporary issues in Intellectual disabilities. Nova Science Publishers. New York.